As a registered nurse, I
specialized in oncology, and within that specialty, I later worked almost
exclusively with patients at the end of their lives, eventually volunteering with
hospice. I shared some remarkably special times with my patients and their
families. Most people reach a new understanding of themselves when faced with their
mortality, and it’s not always pretty.
The emotional changes in some of
them were often astonishing. I appreciated their honesty. The majority passed through the various stages of death
as chronicled by Dr. Elizabeth Kubler-Ross, rarely in the order of one through
five, but in the order that met their needs. Some moved through a stage of
grief and then rounded back to it later in their illnesses to complete more
work. I wish I could tell you that every patient I met came to a sense of peace
before they left this world, but that would be untrue. Ninety percent did, which
was very forgiving to the patient, their families, and the staff. Most had last
minute messages for someone they cared about, and quite a few revealed
long-kept secrets that both pleased and angered their families and friends.
The one thing that I can unequivocally
state is that every one of them at some point over the last few weeks mentioned
the things they wished they had done,
wishes and dreams postponed until too late. A lot of those things had to do
with age. Patients over fifty often wished they had kept stronger ties with old
friends, classmates, people they had worked. They talked frequently of friends,
yet refused to contact them, as it “would feel peculiar now.” Women spent time
remembering first dates, late night sleepovers with girlfriends. Men remembered first dates, gridiron
battles. All laughed and cried.
It wasn’t unusual to hear
men also talk about the lost time with
their children, wishing they had slowed down long enough to make every ball
game and dance recital, but mostly, to go on family picnics and bike rides. “I
was always worried about money, and all the things I thought they needed. What
they needed was me.” They ruminated about lost opportunities to really get to
know their children and spend both quiet time and fun time with their wives. I often looked at old photo
albums and wrote notes on the backs of pictures for them. This was a time when
nurses were at the bedside, and it was a good thing, because patients who were
alone truly needed us.
Research has shown time
and again that the stressors in our lives, the abandoned dreams, the fear of
looking or acting peculiar too often result in chronic or catastrophic illness, but most of us don’t honor our
health until it’s too late. We shrink behind our duty to friends, jobs, and family, and somehow, the days slip away
one by one. We don’t recognize the freedom that good health bestows on us until
it’s a vapor.
What all of these
situations have in common is responsibility,
but not what you’re probably thinking. I’m talking about the responsibility to
give ourselves the luxury of laughing, of enjoying the small things, of
reveling in the unabashed rebellion of independence.
If you don’t have a bucket list, grab a piece of paper—a napkin,
envelope, grocery list—and write down ten things you will be sad to die and
have foregone. Quick, now. Don’t think about it. What are the odds that any of
them will get done? If you already have a bucket list, check it over. How long
ago did you write it? Have you done even one of the items?
had gathered their courage and shared their
feelings—not just positive but negative feelings. They finally understood what
had been at stake and what had been lost by not telling others how they felt. Two
of my favorite books are The Unlikely Pilgrimage of Harold Fry by Rachel
Joyce and her subsequent book, The Love Song of Miss Queenie Hennessey. What
I have failed to express in this missive, Joyce does beautifully.
Here is my challenge to you this week.
Don’t die with your
stories tucked away in the cupboards of your mind.
Don’t die with your imagination
shriveled and dusty.
Don’t die without giving
your stories the chance to sit in the sun.
Don’t forget. The clock
is tick...tick...ticking.
Write like you mean
it. Mahala
A beautiful post, and much needed.
ReplyDeleteRecent national events prompted me to write this. I appreciate your feedback.
DeleteMahala
Thank you.
ReplyDeleteYou are welcome. It is truly heartfelt.
ReplyDelete